For parents across Tyneside

Tag Archives: Stillbirth and Neonatal Death Society

 

Did you know?

17 babies die every day in the UK (11 are stillbirths, 6 are neonatal deaths)

 

SANDS is a national charity, with local support groups based around the country. It was established by bereaved parents in 1981 and, over the last 30 years, it has provided emotional support, comfort and practical help to thousands of families.

Thanks to the work of SANDS, gone are the days when stillborn babies are whisked away before their parents can see them, never being given the chance to welcome their babies into the world and say a proper goodbye. Now we know that when a baby dies the care that parents receive from health professionals, as well as the time spent with their baby, has a huge impact on their perception of the experience, and how they cope and deal with their loss in the long term.

The charity works to:

1)      Provide Support

  • National Helpline: 020 7436 5881 or e mail helpline@uk-sands.org
    where bereaved parents, family members and health professionals can talk in confidence to an experienced support worker. The helpline service currently receives over 200 calls each week and sends out 130 bereavement information packs a week.
  • Local support groups
  • Publications and leaflets for parents, family members and health professionals
  • www.uk-sands.org The website provides information, support and a forum for bereaved parents, Sands Groups and for health and social care professionals.

 

2)      Improve care when a baby dies

SANDS works closely with health professionals to improve the care that parents receive in hospitals.  No one can ever take away the pain that parents feel when their baby dies but sensitive, supportive care in hospital can help to ease the grieving process. SANDS believe that the principles of honesty and respect and the need for clear information and communication should underpin bereavement care.

 

3)      Promoting research to reduce the loss of babies’ lives

17 babies are stillborn or die shortly after birth every day in the UK and SANDS wants to ensure that as few parents as possible have to experience this devastating loss.

The charity maintains strong links with researchers and organisations to promote changes in practice which could help to save more babies’ lives, and to identify and fund research which could further progress understanding of stillbirth and neonatal death.

 

Did you know?

For over half of all stillbirths the cause remains unexplained. These babies are born perfectly formed, with no clear reason why they died.

 

If you need support, information or advice: 

SANDS National Helpline: 020 7436 5881 and helpline@uk-sands.org

The Helpline is for anyone who has been affected by the death of a baby and wants to talk to someone about their experience. Most of the people who call the Helpline are parents whose baby has died, their loss may have been very recent, or may have happened many years ago.

SANDS also welcome calls from:

  • Relatives: grandparents, siblings, aunts and uncles or friends
  • Health care professionals: GPs, health visitors, hospital staff, mental Health workers
  • Other professionals involved with bereaved people: clergy, funeral directors
  • Employers who have a bereaved parent returning to work.

The Helpline team are there to listen and give support. They can advise you about finding local help, whether from a Sands group or other counselling services, and have information about other relevant support organisations.

The Helpline is open 9.30am – 5.30pm, Monday – Friday and Tuesday and Thursday 6 – 10pm.

 

 It is an incredible charity, providing vital support and research. Local mum Frankie is raising money for SANDS:

http://birthandbabynetwork.com/2012/05/28/an-amazing-challenge/

www.justgiving.com/frankieschallenge

or you can text a donation by texting the code ELLA60 + the amount £1, £2, £3, £4, £5 or £10 to 70070

 


June is SANDS Awareness Month
 

17 babies a day are born sleeping or they died soon after birth and the Stillbirth and Neonatal Death Society (SANDS) wants to raise money as well as awareness about stillbirth and neonatal death.

As well as raising money to allow SANDS to continue supporting parents, raising awareness of stillbirth and neonatal death can help to stop it being a taboo subject, which no-one want to talk about especially to the parents whose baby has died.

When a baby dies, it is a tragedy which parents, grandparents and siblings will never get over and it can be an incredibly isolating time. It is also hard for family, friends and colleagues, who often don’t know what to do or say but the truth is there are very few rights and wrongs.

It is almost five years since my baby son died and I remember with fondness all the hugs, the tears, the emotions and the words of kindness from friends and I am still hurt by the actions of the people who avoided me or asked if I was over it yet.

Be sensitive, don’t avoid grieving parents, say what comes from the heart, let them cry, encourage them to talk, listen but try not to tell them what they should be doing or feeling. There is more information on supporting parents on the SANDS website.

Throughout June I will be writing about SANDS and how to support parents whose baby has died, as well as supporting the siblings, who are also affected by the death of their baby brother or sister.

 

Useful Links:

www.uk-sands.org

Newcastle support group

North Shields support group


The Birth & Baby Network will be featuring a regular diary from local mum Frankie, as she trains for the wonderfully mad challenge she has set herself to raise much needed awareness and funds for SANDS, the Stillbirth and Neonatal Death charity.

 

Here’s the challenge:

A half Ironman Triathlon over three days in September:

  • Swim a mile on the Friday
  • Cycle 56 miles on the Saturday
  • Do the Great North Run on the Sunday

 

In Frankie’s words:

Please bear in mind that I am overweight, stupidly unfit and currently feel like I have the bones of an 80 year old! I am fully committed to the craziest plan I’ve ever had and I’m staring at a 7 month old turning his nose up at the lumpy banana porridge I’m trying to feed him thinking how on earth am I ever going to manage to do this. I don’t even have time to brush my hair most mornings let alone fit in mental athlete style training and I seem to have already hurt my knee by walking through the park!

 

Watch this space, it’s going to be an interesting journey…



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