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Tag Archives: babyloss

This week (October 9 – 15) has been Babyloss Awareness Week – to remember those babies who were miscarried, stillborn or who died after birth.

 Losing a baby is a devastating experience for families and the grief is never far from the surface, whether it was last week, a year ago or fifty. We all deal with our grief differently, some of us are open about it, but other families aren’t able to do this as easily. Friends and family members can sometimes ignore the tragedy, not wanting to mention it for fear of causing upset, sometimes not wanting to admit they feel grief because it wasn’t their baby.

 As a culture we tend not to handle death and grief very well and people often don’t know what to say to someone whose baby has died. Truth is, try to be honest, say how sorry you are, say you don’t know what to say but please don’t ignore the parents and please don’t try to make them feel better, because you can’t.

Thankfully, I was mainly surrounded by love and sympathy when my son died, but I still remember very clearly the people who crossed the street to avoid me and I remember the people who thought they were doing good by saying things like: atleast you have two more children, you can always try for another one, are you over it yet? and, my favourite, atleast he was just a baby, it would have been harder if he had been older.

Babyloss Awareness Week is about standing together as parents, knowing we are not alone, knowing there are millions of families out there who are remembering their babies.

 

 Wave of Light

Babyloss Awareness Week ends on October 15th when anyone who has been affected by the death of a baby is asked to light a candle at 7pm to create a wave of light so that people across the country can unite together to remember all of the babies who have died during pregnancy, labour or after birth.

The charity 4Louis have arranged an event at Souter Lighthouse from 6pm – it is an opportunity for bereaved parents to meet in one place, to light a candle and to remember their angels. At 7pm, the lighthouse light will be switched on and the foghorn will be sounded.
All bereaved parents, grandparents, family and friends are welcome to attend.

 

For ongoing support, Newcastle SANDS runs free, informal monthly support group meetings in Newcastle for mums, dads, brothers, sisters, grandparents or family friends.
You can also follow them on Twitter: @nclsands


This is Frankie’s diary as she trains for an amazing half Ironman Triathlon challenge in September. Frankie is mum to Ella, who would have been two in September, and to one year old Isaac. In her words, she is fat and unfit, yet she is planning on swimming a mile, cycling 56 miles and completing the Great North Run to raise awareness of and money for SANDS and there’s only just over a week to go…

Lovely people keep asking me how the training is going. They are kind and interested. My response has become a bit repetitive ‘ok’ I say, pulling a twisted face to imply that ok but not brilliant -  “the ankle is still bad, which means I’ll be walking the GNR, but I’ll still be doing it” I reassure them “even if I crawl across the line!” This ankle issue is getting boring now, it is not going to rectify itself now but it has also been the main reason I give for my feeling that things are not going brilliantly. Having a concrete reason to give does make it easier but I do find myself holding back. It is not the time or place to pour my heart out and really, if I am struggling that is not really important is it? Completing the thing I have promised I would do however is, so why would I share all the other stuff…. I don’t, except to a close few. This journey has been much more emotionally complicated than I ever imagined it would be. My biggest fear is letting people down by not completing it.

The challenge itself is a simple one but for me it is surrounded by an emotional and physical swirl, it feels like you’re sitting on the edge of the heart of a tornado. Looking in, there is this untouchable calm that I can’t quite reach and surrounding me is a whirlwind of emotional madness and niggly physical issues that keep buffering me about. I haven’t been totally swept up in it, yet it is constantly pushing me about like an annoying bully, just enough to make me feel like I am pretty out of control.

I don’t think that I will get to the calm until these last few weeks have finished, and it doesn’t help that I also just can’t see how it’s going to go. Training has stalled because of injury (and not just the ankle, but it’s too boring to explain!). Then there are the emotions, which are the hardest to bear. I haven’t written for weeks and it is because I have found myself retreating and not just from training. Talking about why I’m doing it, what happened to Ella and our family and sharing it on a daily basis for months now is taking its toll. It is as raw as it was two years ago and that has floored me! I think I was naive to think that it wouldn’t be like that and I brushed it aside but it got too much for me so I shut down. I don’t think I have been depressed but I have touched the elements that could send you down that road I’m sure.

I don’t regret anything I have shared and I will continue to do so, but I need to acknowledge that it has been hard.

So the next week will be about getting the damaged bits as healthy as possible and building up as much fitness back as I can to get me to the start!

 

This is an incredible physical and emotional challenge for Frankie, which she is doing to honour her daughter Ella and to raise money for SANDS. Please donate what you can spare, even £1 will help Frankie reach her target of £2,000

www.justgiving.com/frankieschallenge

or you can text a donation by texting the code ELLA60 + the amount £1, £2, £3, £4, £5 or £10 to 70070


This weekend I visited a SANDS Memorial Garden in the Midlands…

 

A beautiful, tranquil haven for parents to remember their baby, it gives a sense of peace and my tears fell openly as I walked along the winding path with led to the garden.

SANDS

The garden is simple and calm, the focus being the small baby and teardrop of the SANDS logo and the path is lined by thousands of pebbles, placed by parents to remember their baby

SANDS

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I would love to see a garden like this in the Newcastle area. We all remember our babies everyday, we all have graves or special places to visit but, like our grief, this is isolating. A garden like this remembers all our babies, it reminds us we are not on our own.


My lovely friend Frankie, who is raising money for SANDS, tells her story in today’s Journal…

A fitting tribute to our baby – Features – Lifestyle

Please read, share and donate – even a small amount will contribute a lot to a vital charity which helps parents when their baby dies.


I would like to do a massive shout out to Ivan and Nadine, who have now raised £200,000 for the Children’s Heart Unit at The Freeman Hospital. Through blood, sweat and tears they have run marathons, completed fantastic C2C challenges, and organised annual fundraising balls. The last test of endurance by Ivan was running 100 miles in 24 hours in April -  a truly amazing challenge.

Ivan and Nadine, along with some pretty fantastic friends and family, do this to say thank you to the unit and the staff who saved their son’s life. In Ivan’s words: “As many will be aware, the initial idea to raise money for CHUF came when we were sat in PICU (Paediatric Intensive Care Unit) watching our 16 week old son Sebastian cling onto life by a thread. As he slowly recovered and grew stronger we felt an overwhelming urge to thank people; his surgeon Mr Asif Hasan, the anaesthetist Dr Simon Haynes, his Cardiologist Dr Richard Kirk and every single nurse working their back sides off, in the hardest medical environment imaginable. The problem is these people ‘just’ see their work as normal…!!! There is also only so many times you can hug someone before they think you’re weird. When we heard about CHUF we both knew what to do and our journey began.”

It is an amazing unit, and anyone who has ever had to be there with their child will feel the same. Almost five years ago me and my husband sat there with our newborn son, who needed life-saving heart surgery. Jamie’s nurse made sure that, despite all the wires, we felt connected to our boy – we couldn’t cuddle him but we stroked him and washed him and spoke to him and kissed him. The staff were honest and sensitive with us every step of the way, even when it was clear that he couldn’t be saved. The surgical team battled for 12 hours to save our son, Jamie’s nurse sat with us and kept us informed, and she was the one who brought in our beautiful son to us after he had died. The staff helped us so much and we have many many fond memories because of them and they made the hardest time of our lives slightly easier to bear.

I am in awe of Ivan and Nadine and I will support them and their passion to raise money for the Children’s Heart Unit for as long as they continue to do it.

To donate: visit www.Justgiving.com/Seb4chuf or text ‘CHUF99’ and ‘£5’ or ‘£10’ to 70070.

You can read more about Seb4Chuf here 



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